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Occupational therapy and genetic or congenital conditions

Lifelong conditions and changing needs: what OT assessment covers and why review timing matters.

Who we work with·Genetic & congenital conditions·Last reviewed

Genetic and congenital conditions are lifelong, and the needs they create change, sometimes with growth, sometimes with progression, sometimes because life changes rather than the condition does. Occupational therapy here is less a single assessment than a series of them at the right moments.

What the assessment covers

  • Daily function across self-care, home and community
  • Mobility, transfers and posture
  • Equipment that still fits, and equipment that has stopped fitting
  • Home access as needs change
  • Fatigue, pain and endurance where the condition involves them

Why timing matters more here

Equipment specified for a person’s current size, strength or posture has a working life. Where a condition is progressive, or where someone is still growing, the prescription has to anticipate that: approval and build times mean equipment ordered for today can arrive already outgrown.

Ask for review before something stops working. Reassessment scheduled against the plan cycle is far easier than reassessment triggered by a breakdown.

Most of this runs through a functional capacity assessment and an assistive technology assessment.

Common questions

How often should equipment be reviewed?

Before it stops working, rather than after. Review scheduled against the plan cycle is much easier than review triggered by a breakdown.

Can a prescription anticipate growth or progression?

It has to. Approval and build times mean equipment ordered for today can arrive already outgrown.

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